Well, after only 34 days on Depakote I have stopped using it. I had been experiencing some crazy side effects that I felt just couldn't be dealt with. Not only were the side effects disturbing to say the least, it was not helping in any way with my CH. Yet another epilepsy drug that doesn't work on my CH. These brain chemistry type drugs have all been a bust for me. I believe I am highly sensitive to their effects. For example, on merely 500mg/day of Depakote I was feeling the same side effects of those on more than 2500mg/day. The "fog of thought" as I like to call it, my hair falling out, bone aches and stiffness, and pretty unpleasant personal matters as well. That will be the last time I use a drug that was meant for seizures or brain chemistry alteration.
I have been on Verapamil for 3 years now with no horrible side effects. My Neurologist finally agreed with me on upping the dosage like all other CH patients. First stop, 720 mg/day with an EKG on Friday to see the effects on my heart rate. This is after all used to lower blood pressure in most people. Calcium channel blockers FTW!
Here's to hoping it works.
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