Tuesday, March 22, 2011

Don't jinx it you fool!

Well, I am going to talk about that no-hitter while the game is still on. I know it's not supposed to be done that way for superstition sake, but what the hell, I'm excited!

I have been off the Verapamil for 1 full week now. I am also headache free for one month as of today! I am no longer a chronic cluster headache sufferer by definition. I had daily headaches with or without verapamil for 3 years. Now, I feel like grabbing strangers and telling them too.

I've earned a candy bar and a beer.

Can I get an amen?

Thursday, February 3, 2011

Ouch

Had a little stinger last night, maybe k5 or so, and it woke me up about 3am. Oxygen killed it in less than 5 minutes. I love my regulator. The 40LPM setting really kicks ass at 3am. It's a bit noisy and usually disturbs my wife, but not nearly as much as me yelling, screaming, and smacking my head on the floor.
I was wondering if anyone had a demand valve rig. I have a few questions for them about the requirements. A demand system would probably same on the amount of O2 being used. Am I correct in assuming that if you aren't breathing in, it sends nothing? Unlike the traditional system that has gas flowing out whether you're breathing it or not.
I love my tank. It is green and gorgeous. It is cold, and warming at the same time. I think I am in love with my oxygen. Is that abnormal? I just wish I had a smaller rig I could take with me on excursions away from the domicile.

Tuesday, February 1, 2011

Screaming silently

I can hear the pain tearing at my soul.
I can feel the demon's breath as it claws through my will to live.
Does the color red have to sound so dire?
As I reach for the dagger, the giver of new life,
I see the sounds that I've been hearing with my watering eyes
That wall of detriment, of excrement, of hated things, of love.
The sweet sound of exit is touching my thigh.
The metal is so cold.
"Wait!", it says, "don't you want to feel some more?"
No...
And the liquid flows.

Friday, January 21, 2011

The never ending medication

I have been taking this stupid Verapamil for three years now. I am sick to death of feeling so tired all of the time. I am sick to death of trying not to forget a dose or two. These big pharmaceutical companies and their killer prices are going to kill the want to be better. Luckily I have insurance that helps. It's still $30 every month just for the Verapamil.
I have found some alternative treatments that seem to work, but I'm not always able to partake in them. This weekend might just push me over the edge. The Verapamil is no longer working like it used to, and the side effects are getting unbearable. I cannot just stop taking it for fear of further damage to my body. I have to wait another month for my new neurologist appointment. This one is actually a true headache specialist, so here's hoping!
That is all for today. Hope y'all have a great, and pain free weekend!

Thursday, January 20, 2011

January is not only cold, it's painful

Wednesday PM, says that little red tab on my medication tray...shit! I forgot an evening dose. Those are the most detrimental due to being twice as large as the morning dose. I guess I shouldn't be so worried. It's not like it has been working anymore anyway. Looks like tonight is going to be another screamer because forgot to fill my oxygen tank this afternoon, so no instant relief.
Maybe I'm imagining this, butI think I can feel the lack of oxygen creeping up my neck for another sweet kiss of sledgehammer in the eye tonight. My oh my, how I loathe the need for pain relief. Don't get me wrong I enjoy the relief, but when it doesn't work, or I forget to fill the tank, I might as well not have it.
I hate pain.

Wednesday, November 24, 2010

Screaming in the night

Hits while sleeping are not very fun. Much needed rest interrupted by excruciating pain is the suckiest suck that ever sucked.

Pain is necessary to remind how good things are when we don't have it. Feckin' sleep deprived and stressed. I will sleep tonight.

Tuesday, November 23, 2010

Another hit at school

Well, it's at it again. That damned beast wrecking havoc on my brain. Luckily I had one more shot of Imitrex left in my backpack. It was 30 minutes until my next class and I was stuck in public. This is not the ideal situation when the beast comes calling. It took about 20 minutes for the Imitrex to work which left me 10 minutes until class. Another tragedy narrowly averted. I am so sick of these.